So. In a nutshell, the cancer cells inside my bones continue to percolate and mostly ignore the mellow treatments we’ve been dosing with. Therefore: Onto a new treatment. One that includes prescription meds to the tune of $1500-$2000 per month, and me without any prescription drug coverage. But Wait! There’s a clinical trial with this exact med that I qualify for. Usually phase 1 trials are for folks with fewer options… but I think it’s a great fit, and it’s at the least improved my mood for this week.
I start in about a month, with a drug called Lapatinib, which is a very fun name to make fun of and purposely botch when trying to say it.
The Good Parts of doing this study and drug = it might well beat back my HER2/neu positive cancer cells, maybe. It causes a wee bit of diarrhea so I therefore might lose some weight. (In my case that’s a good thing, not just for fitting into fun dresses from the thrift store, but losing 10-20# is good health/cancer-wise too.). The study will pay for extensive tests to check out most of my organs and then some, including a motion picture of my heart beating. I will have to spend more time in SF. Oh, and the bigger picture with this particular therapy study, if it works, and they learn something with me that helps future Mets Girlz, I’m all over it.
The Drawbacks: hmmm. some of the above things could be drawbacks. This drug might make me a bit tired (I’d better get in there and clean up some stuff in my house so I can take happy naps!), and a small chance of a rash on my face. If it beats back the icky cancer, I’m ok with that. And no hair loss at this time, so no wigs/hats/large earrings just yet.
Off to the Trials!!